Clinical Trials

The following are clinical trials actively recruiting RRP Patients.

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2018 Nov – New Immunotherapy trial for Adults with RRP at NIH – recruiting new patients.  For more details


2018 Immunological/Genetic Juvenile RRP research study at Mass Eye & Ear and Mass General Hospital
For more details

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NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1antibody therapy. See announcement to RRP practitioners – August 9, 2016.
For more details

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NIH Research Study on Severe Viral Infections in Non-immunocompromised PatientsJoin the Study

Learn More

RRP Patients

Connect with fellow patients on our email listserve, take a survey, and learn about adjunctive RRP therapies.

Read more

To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"


Find a Practitioner

Find an RRP Practitioner near you! A complete listing of practitioners around the world is listed.

Find Yours

Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

Start exploring


Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories


Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

Start Browsing

About the Foundation


The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Stories

Morgan Toll on Inside Edition

https://www.insideedition.com/media/videos/woman-vocal-cord-disease-fights-her-dream-52126...[Read More]

2019 Rare Disease and HPV Awareness Days Patient Image Stories

Rare Disease Day and HPV Awareness Day Image Stories...[Read More]

Foundation News

Loss of Another RRP Warrior

The Recurrent Respiratory Foundation is deeply saddened by the loss of RRP Warrior, Olivia Chaparro. Olivia was a loved member of the RRP community and...[Read More]

RRP Foundation Pulmonary Papillomatosis Research Initiative (PPRI) 2018-19 Grant – RFP

The RRP Foundation is pleased to announce that we are providing funding of $50K for an RRP research study, "Murine Papillomavirus as a model for...[Read More]

HPV Awareness Day 2019 march 4

The International Papilloma Virus Society along with a number of HPV partner organizations remind the RRP/HPV communities that March 4, 2019 is HPV Awareness  Day. ...[Read More]

In memory of Jeremy Spock

I am very saddened to report that on September 9, 2018, RRP patient Jeremy Spock passed away at the tragically young age of 35.  He...[Read More]

RRP & Avastin Online Survey for Patients/Parents

RRP Community- Anonymous Survey to Patients   The recurrent respiratory papillomatosis (RRP) task force is currently working to develop...[Read More]

RRP & Avastin Online Survey for Practitioners

Dear Colleague, On behalf of the Recurrent Respiratory Papillomatosis Taskforce, I am inviting you to participate in the development of an expert...[Read More]