Clinical Trials

The following are clinical trials actively recruiting RRP Patients.

NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1antibody therapy. See announcement to RRP practitioners - August 9, 2016.
For more details

NIH Research Study on Severe Viral Infections in Non-immunocompromised Patients - Join the Study

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RRP Patients

Connect with fellow patients on our email listserve, take a survey, and learn about adjunctive RRP therapies.

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To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"

Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

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Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories

Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

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About the Foundation

The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Story

Katie Thompson

DSCN5963"Our little girl Katie was diagnosed with RRP in February 2011 at age 6. Ever since she began talking her voice was somewhat raspy. She talked clear but every now and then it was a little raspy sounding. Whenever we would ask about her voice, we were told “she just has a very unique voice” and it’s so cute.  With that we thought ok, nothing to worry about then.  As...[Read More]

Foundation News

RRP Task Force Meeting in Chicago on May 19, 2016

On May 19 The RRP Task Force, headed by Dr. Craig Derkay held their Spring 2016 meeting in Chicago. Representing the RRP Foundation at this...[Read More]

Jenn Woo, President of the RRP Foundation, has passed away

Dear RRP Community, It is with deep sadness and sorrow that I am letting you know that Jenn Woo, President of...[Read More]

RRPF Supports Cell Reprogramming Research at Georgetown Univ.

In late December 2014, the RRP Foundation awarded a $5000 grant to the Georgetown University Center for Cell Reprogramming.  A research team headed by Dr....[Read More]

RRP Meeting / CME Course at Johns Hopkins May 30 2014

On May 30,  2014, Johns Hopkins sponsored a CME course/meeting on RRP - "Updates in Recurrent Respiratory Papilloma: Clinical and Research Perspectives"...[Read More]

RRP Reference Service 2013 Fall – Winter

The latest issue of the RRP Reference Service (2013 Fall - Winter) is now available at the following link:[Read More]

New RRP Resource Sites

Mass Eye and Ear Dept. of Otolaryngology RRP Info. Page Christopher Hartnick, MD Bastian Medical Media for Laryngology- RRP ...[Read More]