Clinical Trials

The following are clinical trials actively recruiting RRP Patients.

———————————————————–

2018 Nov – New Immunotherapy trial for Adults with RRP at NIH – recruiting new patients.  For more details


2018 Immunological/Genetic Juvenile RRP research study at Mass Eye & Ear and Mass General Hospital
For more details

—————

NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1antibody therapy. See announcement to RRP practitioners – August 9, 2016.
For more details

————–

NIH Research Study on Severe Viral Infections in Non-immunocompromised PatientsJoin the Study

Learn More

RRP Patients

Connect with fellow patients on our email listserve, take a survey, and learn about adjunctive RRP therapies.

Read more

To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"


Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

Start exploring


Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories


Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

Start Browsing

About the Foundation


The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Stories

My name is Beverly Wilson, I am 27 years old

I have a disease called Juvenile Recurring Respiratory Papillomatosis, also known as RRP. RRP is a severe breathing condition where papilloma’s grow on the vocal cords/airway and block it. It can also cause narrowing of the airway.   Here is my story: When I was born, I contracted RSV which is a virus/cold that is theorized to have caused the RRP...[Read More]

Foundation News

RRP Foundation Pulmonary Papillomatosis Research Initiative (PPRI) 2018 Grant – RFP

The Recurrent Respiratory Papillomatosis Foundation is continuing its PPRI by issuing a request for proposals (RFP) from qualified investigators interested in advancing understanding and treatment...[Read More]

In memory of Jeremy Spock

I am very saddened to report that on September 9, 2018, RRP patient Jeremy Spock passed away at the tragically young age of 35.  He...[Read More]

RRP & Avastin Online Survey for Patients/Parents

RRP Community- Anonymous Survey to Patients   The recurrent respiratory papillomatosis (RRP) task force is currently working to develop...[Read More]

RRP & Avastin Online Survey for Practitioners

Dear Colleague, On behalf of the Recurrent Respiratory Papillomatosis Taskforce, I am inviting you to participate in the development of an expert...[Read More]

In Memory of Karen Barnes Medley

It is with much sadness that we report that 36 year old Karen Barnes Medley has tragically lost her battle with pulmonary RRP and lung...[Read More]

Highlights of 2018 Spring RRP Meetings – National Harbor, Washington, DC

On 2018 April 19 representatives from the RRP Foundation attended and participated in the RRP Task Force meeting. On April 20, as part of the...[Read More]