Clinical Trials

The following are clinical trials actively recruiting RRP Patients.

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2018 Immunological/Genetic Juvenile RRP research study at Mass Eye & Ear and Mass General Hospital
For more details

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NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1antibody therapy. See announcement to RRP practitioners – August 9, 2016.
For more details

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NIH Research Study on Severe Viral Infections in Non-immunocompromised PatientsJoin the Study

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RRP Patients

Connect with fellow patients on our email listserve, take a survey, and learn about adjunctive RRP therapies.

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To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"


Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

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Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories


Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

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About the Foundation


The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Story

Katie Thompson

"Our little girl Katie was diagnosed with RRP in February 2011 at age 6. Ever since she began talking her voice was somewhat raspy. She talked clear but every now and then it was a little raspy sounding. Whenever we would ask about her voice, we were told “she just has a very unique voice” and it’s so cute.  With that we thought ok, nothing to worry about then.  As...[Read More]

Foundation News

RRP & Avastin Online Survey for Patients/Parents

RRP Community- Anonymous Survey to Patients   The recurrent respiratory papillomatosis (RRP) task force is currently working to develop...[Read More]

RRP & Avastin Online Survey for Practitioners

Dear Colleague, On behalf of the Recurrent Respiratory Papillomatosis Taskforce, I am inviting you to participate in the development of an expert...[Read More]

In Memory of Karen Barnes Medley

It is with much sadness that we report that 36 year old Karen Barnes Medley has tragically lost her battle with pulmonary RRP and lung...[Read More]

Highlights of 2018 Spring RRP Meetings – National Harbor, Washington, DC

On 2018 April 19 representatives from the RRP Foundation attended and participated in the RRP Task Force meeting. On April 20, as part of the...[Read More]

In Memory of Margarita Kleinman

We are very saddened to learn of the death of 39 year old Margarita (Margie) Kleinman, who lost her battle with pulmonary RRP earlier this...[Read More]

HPV Awareness Day March 4, 2018

The International Papilloma Virus Society along with a number of HPV partner organizations have designated March 4, 2018 as HPV Awareness  Day.  It is hoped...[Read More]