Clinical Trials

The following are clinical trials actively recruiting RRP Patients.

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2018 Immunological/Genetic Juvenile RRP research study at Mass Eye & Ear and Mass General Hospital
For more details

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NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1antibody therapy. See announcement to RRP practitioners – August 9, 2016.
For more details

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NIH Research Study on Severe Viral Infections in Non-immunocompromised PatientsJoin the Study

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RRP Patients

Connect with fellow patients on our email listserve, take a survey, and learn about adjunctive RRP therapies.

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To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"


Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

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Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories


Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

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About the Foundation


The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Story

Katie Thompson

"Our little girl Katie was diagnosed with RRP in February 2011 at age 6. Ever since she began talking her voice was somewhat raspy. She talked clear but every now and then it was a little raspy sounding. Whenever we would ask about her voice, we were told “she just has a very unique voice” and it’s so cute.  With that we thought ok, nothing to worry about then.  As...[Read More]

Foundation News

In Memory of Karen Barnes Medley

It is with much sadness that we report that 36 year old Karen Barnes Medley has tragically lost her battle with pulmonary RRP and lung...[Read More]

Highlights of 2018 Spring RRP Meetings – National Harbor, Washington, DC

On 2018 April 19 representatives from the RRP Foundation attended and participated in the RRP Task Force meeting. On April 20, as part of the...[Read More]

In Memory of Margarita Kleinman

We are very saddened to learn of the death of 39 year old Margarita (Margie) Kleinman, who lost her battle with pulmonary RRP earlier this...[Read More]

HPV Awareness Day March 4, 2018

The International Papilloma Virus Society along with a number of HPV partner organizations have designated March 4, 2018 as HPV Awareness  Day.  It is hoped...[Read More]

RRP Task Force Meeting in Chicago on May 19, 2016

On May 19 The RRP Task Force, headed by Dr. Craig Derkay held their Spring 2016 meeting in Chicago. Representing the RRP Foundation at this...[Read More]

Jenn Woo, President of the RRP Foundation, has passed away

Dear RRP Community, It is with deep sadness and sorrow that I am letting you know that Jenn Woo, President of...[Read More]