RRP Patients May Be Eligible for Social Security Disability. See Details
The International Papilloma Virus Society along with a number of HPV partner organizations remind the RRP/HPV communities that March 4, 2020 is HPV Awareness Day. It is hoped by creating greater awareness of the HPV along with ways to prevent and treat it, we may be able eliminate HPV and RRP for future generations.
You can find more information at the HPV Awareness Day website: http://www.askabouthpv.org/
I am very saddened to report that on September 9, 2018, RRP patient Jeremy Spock passed away at the tragically young age of 35. He was first diagnosed at 8 months old. I first met Jeremy when he was about 9 years old and was amazed to learn that this happy kid, who I played a bit of soccer with, had already endured over 100 surgeries for RRP. Over his short life, Jeremy had over 350 surgeries, but it was about 5 years ago that the RRP progressed to his lungs and transformed to carcinoma. Recently, Jeremy was part of an immunotherapy trial, which unfortunately did not work for him.
Throughout the many years that Jeremy battled RRP his parents Susan and Bob Spock were incredible advocates in seeking the best available treatments.
Although I believe that I only met Jeremy personally on two occasions, I felt so much closer to him. Jeremy will be missed by so many of those he touched in life.
The Spock family has requested that for those who wish to make a donation in memory of Jeremy, please donate to the RRP Foundation at: rrpf.org/donate
Donations will be dedicated to pulmonary RRP research
On 2018 April 19 representatives from the RRP Foundation attended and participated in the RRP Task Force meeting. On April 20, as part of the larger 2018 Spring Combined Otolaryngologic Societies Meeting (COSM), representatives of the RRPF also attended an RRP panel discussion, which included presentations from some of the leading RRP researchers. The following links provide some detailed highlights of these meetings:
We were very encouraged by some of the research/clinical topics presented/discussed.
If you have any questions or feedback, please post to the RRPF email listserve or to the RRP Foundation Facebook page.
The International Papilloma Virus Society along with a number of HPV partner organizations have designated March 4, 2018 as HPV Awareness Day. It is hoped by creating greater awareness of the HPV along with ways to prevent and treat it, we may be able eliminate HPV and RRP for future generations.
You can find more information at the HPV Awareness Day website: