About RRP

Recurrent Respiratory Papillomatosis (RRP) is a rare, chronic disease caused by the human papillomavirus (HPV), specifically types 6 and 11.

RRP is characterized by the growth of benign (non-cancerous) tumors called papillomas in the respiratory tract, particularly on and around the vocal cords in the larynx (voice box). These growths can also spread to other parts of the respiratory system, such as the trachea, bronchi, and lungs.

SYMPTOMS OF RRP

Hoarseness: The most common symptom, caused by papillomas interfering with the normal vibration of the vocal cords.

Chronic cough: Persistent coughing due to irritation in the respiratory tract.

Difficulty breathing: In severe cases, the tumors can obstruct the airway, leading to breathing difficulties.

Voice changes: Changes in voice quality, such as a weak or strained voice.

HOW IS RRP CONTRACTED?

RRP is caused by HPV types 6 and 11. The virus can be transmitted from mother to child during childbirth, or through sexual contact.

TYPES OF RRP

Juvenile-onset RRP: Typically diagnosed before age 5 and often more aggressive, requiring frequent surgical interventions.

Adult-onset RRP: Usually diagnosed after age 14 and tends to be less aggressive.

HOW IS RRP DIAGNOSED?

Laryngoscopy: A procedure where a scope is used to view the larynx and detect papillomas.

Biopsy: A sample of the growth may be taken to confirm the diagnosis.

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Breaking News!!!

RRPF President, Kim McClellan to speak at the White House Rare Disease Forum

Tonight! February 28th @ 5:30PM EST