Join the Fight Against Rare Respiratory Diseases

At RRPF, your support means the world to us and to those living with rare diseases. By hosting your own fundraiser, you can make a significant difference in the lives of individuals and families affected by these conditions. We provide the resources and support you need to make your event a success.

Why Host a Fundraiser?

Your Impact: Funds raised through your efforts will go directly to support:

  • Patients and Families: Offering much-needed support to those struggling with RRPF.
  • Research and Treatment: Facilitating groundbreaking research and improving treatment options for better patient care.
  • Awareness and Education: Spreading knowledge and understanding of RRPF within communities.

Be a Community Champion: Hosting your own event not only raises crucial funds but also brings communities together to support a vital cause.

Get Started with Our Resources

We’re here to help make your fundraiser a success with:
  • Advertising Materials: Get access to customizable posters, flyers, and social media graphics to promote your event.
  • Event Support: Our team is available to provide guidance and assistance as needed to ensure your fundraiser runs smoothly.
  • RRPF Merchandise: We can provide RRPF branded swag for giveaways or raffles.
  • Resources to locate participants: Our team can locate and contact other RRPF patients and stakeholders near you to increase the reach of your event.

How You Can Help

Ready to make an impact? Host your own fundraiser for RRPF and transform lives today. Whether it’s a bake sale, a community walk, or a charity auction, your creativity and devotion can spark change.

Spread the Word: Don’t have the resources to host a fundraiser yourself? You can still make an impact by spreading the word about RRPF and our mission to support those living with rare
respiratory diseases.

Examples of Community Fundraising Events

Here are some creative ways you can organize a fundraiser in your community:

  • Charity Walk/Run: Host a local walk or run where participants can gather sponsorships to support the cause.
  • Bake Sale: Organize a bake sale at a community center, school, or church and encourage community members to contribute baked goods.
  • Silent Auction: Collect donated items from local businesses and host a silent auction at a community gathering.
  • Trivia Night: Partner with a local venue to hold a fun trivia night where entry fees support your fundraising goals.
  • Benefit Concert: Showcase local talent by organizing a concert with ticket sales going toward the fundraiser.
  • Craft Fair: Feature local artisans and crafters by hosting a fair where a portion of sales is donated to the cause.
  • Car Wash: Gather volunteers to host a car wash event, providing a needed service while raising funds.
  • Dinner Fundraiser: Plan a themed dinner event, such as a spaghetti night or BBQ, where attendees can enjoy a meal for a donation.
  • Raffle: Secure exciting prizes and sell raffle tickets, drawing winners at a local event.
  • Game Night: Set up a board game or video game tournament with entry fees supporting the fundraising effort.


Get creative and think about what might resonate with your community while being feasible and fun!

How to Hold an Online Fundraiser

Taking your fundraising efforts online allows you to reach a wider audience and engage supporters from anywhere. Here’s how you can host a successful online fundraiser:

  1. Set Clear Goals: Define the purpose and financial target for your fundraiser to guide planning and communication.
  2. Choose a Platform: Select a user-friendly online fundraising platform to manage donations securely. Some popular options include GoFundMe, JustGiving, or Facebook Fundraisers.
  3. Craft a Compelling Story: Share the mission of RRPF and the impact funds will have on individuals with rare respiratory diseases. Authentic storytelling can inspire more donations.
  4. Create Engaging Content: Utilize a mix of videos, photos, and written updates to keep your audience engaged. Highlight personal stories or testimonials to create a deeper connection.
  5. Promote Your Event: Use social media, email newsletters, and online groups to spread the word about your fundraiser. Consider hosting live virtual events to bring the community together.
  6. Engage Your Audience: Interact with your supporters through regular updates, thank you messages, and by encouraging them to share the fundraiser with their own networks.
  7. Offer Rewards or Incentives: Consider offering small rewards like shout-outs or thank-you notes to donors as a way to show appreciation and encourage more contributions.
  8. Track Your Progress: Monitor donations and engagement throughout the campaign, making adjustments as needed to maximize success.

 

By following these steps, you can effectively reach a larger audience and make a substantial impact for those affected by rare respiratory diseases, all from the comfort of your own home.

Sign Up to Host a Fundraiser for RRPF

Interested in making a difference? Complete the form below to sign up as a fundraiser host for RRPF. Once you submit your details, our team will get in touch to provide you with all the necessary resources and support needed to organize your event.


Once your form is submitted, one of our representatives will contact you to finalize the details and help you make your fundraiser a success. Thank you for your dedication and commitment!

Breaking News!!!

RRPF President, Kim McClellan to speak at the White House Rare Disease Forum

Tonight! February 28th @ 5:30PM EST