This disease has had a huge impact on my life and the lives of my parents, my extended family, my friends, and anyone that knows me personally. My journey hasn’t been easy, and it still challenges me every single day.
RRPF News! The RRPF is thrilled to share the news of our first hire! Melissa Klein has been hired as the RRPF Development Manager. Melissa
The Recurrent Respiratory Papillomatosis Foundation (RRPF) hosted the inaugural RRP Roundtable meeting in Bentonville, AR November 4-6, 2022. The RRPF assembled 18 national pediatric and
On October 27, 2022, the Recurrent Respiratory Papillomatosis Foundation (RRPF) held a Patient-Led Listening Session with the FDA (Federal Drug Administration). We are excited to
September 13, 2022, Blog Entry – fifth PRGN-2012 research study visit to the NIH. On September 6, 2022, I travelled to the NIH/Bethesda, MD. This
July 31, 2022, Blog Entry – fourth PRGN-2012 treatment at the NIH. On July 27, 2022 I travelled to the NIH/Bethesda, MD for my fourth
On June 14, 2022 I travelled to the NIH/Bethesda, MD for my third treatment in the four-treatment series of this research study. My spouse travelled
Notes from my Participation in a Research Studyat the National Institutes of Health (NIH) STUDY TITLE: A Phase I/II Study of Adjuvant PRGN-2012 in Adult
COSM 2022 Updates COSM, an annual conference for ENT physicians was held in Dallas this week, and the RRPF exhibited a booth to raise awareness
The RRPF is excited to be part of the international awareness-raising event for rare diseases. Rare Disease Day was launched in 2008 and has played
