While we
breathe, we hope

With our voices united, we can and will work to end the burden of this disease on patients and caregivers. 

Patient & Caregiver Toolkit

Dealing with RRP can be overwhelming, but the right tools can make all the difference. Start with our interactive toolkit.

Find a Doctor

RRP is a rare disease. Our directory connects you with providers experienced in treating your condition and supporting your journey.

Research & Community Updates

RRPF is on the front lines of treatment breakthroughs, advancements, and clinical trials. Get the latest information right here.

Our Mission

The RRPF will work to transform the lives of patients with RRP by advocating for a paradigm shift toward non-surgical options by catalyzing innovation through education, research, and collaboration in addition to promoting HPV prevention.

  • Improve care for patients with RRP
  • Advocate for a non-surgical paradigm shift
  • Convene clinicians and researchers
  • Catalyze new research
  • Strengthen RRP community

With our voices united, we can and will work to end the burden of this disease on patients and caregivers.

What we're doing to help the rRP community

Join the RRP Registry

Join the ongoing research in the CoRDS Study

Kid Zone

(Coming Soon) A place for kids to connect with other kids living with RRP

RRPF News

See the latest articles about RRPF and our community

Facebook Support Group

Join our community and find helpful information

RRP Cases Globally
0 +
Avg. Yearly Cost of Treatment
$ 0
Clinical Trials Ongoing
0
New cases of JORRP in the US yearly (estimated)
0
Cures
0

With every breath, we're helping rRP patients get
their second wind

Join our fight today.

Shop Official RRPF Gear

All proceeds support the RRPF mission. Fulfilled through Bonfire.

Keep up to date with rRPF

We work tirelessly to provide the RRP Community with timely and helpful information about trials, treatments and anything else that can help our fight.

Get News & Resources

Subscribe now and be the first to know about stories, updates, and tools to help you in the fight against RRP.

Breaking News!!!

RRPF President, Kim McClellan to speak at the White House Rare Disease Forum

Tonight! February 28th @ 5:30PM EST