While we breathe, we hope

With our voices united, we can and will work to end the burden of this disease on patients and caregivers. 

Our Mission

The RRPF will work to transform the lives of patients with RRP by advocating for a paradigm shift toward non-surgical options by catalyzing innovation through education, research, and collaboration in addition to promoting HPV prevention.

  • Improve care for patients with RRP
  • Advocate for a non-surgical paradigm shift
  • Convene clinicians and researchers
  • Catalyze new research
  • Strengthen RRP community

 

With our voices united, we can and will work to end the burden of this disease on patients and caregivers.

 

What we're doing to help the rRP community

Join the RRP Registry

Join the ongoing research in the CoRDS Study

Kid Zone

(Coming Soon) A place for kids to connect with other kids living with RRP

RRPF News

See the latest articles about RRPF and our community

Facebook Support Group

Join our community and find helpful information

Recent RRP Research News and Education

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RRP Cases Globally
$ 0
Avg. Yearly Cost of Treatment
0
Clinical Trials Ongoing
0
New cases of JORRP in the US yearly (estimated)
14
Cures

With every breath, we're helping rRP patients get
their second wind

Join our fight today.

Keep up to date with rRPF

We work tirelessly to provide the RRP Community with timely and helpful information about trials, treatments and anything else that can help our fight.

Treatment Three of the NIH PRGN-2012

On June 14, 2022 I travelled to the NIH/Bethesda, MD for my third treatment in the four-treatment series of this research study.  My spouse travelled