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Clinical Trials


The following are clinical trials  recruiting RRP Patients or recently completed with relevant results.


2020 Nov 23

INOVIO reports on dosing of first patient enrolled in their PhaseI/II RRP trial


2020 July 29

INOVIO Receives Orphan Drug Designation From U.S. FDA for DNA Medicine To Treat Recurrent Respiratory Papillomatosis 

To learn more go to: Inovio RRP Clincal Trial 2020

2020 June

Inovio Pharmaceuticals is now enrolling RRP patients for a clinical trial to investigate the efficacy of a new immunotherapeutic drug.  Please see the following sites for more information:


2018 Nov – New Immunotherapy trial for Adults with RRP at NIH – recruiting new patients. For more details

2018 Immunological/Genetic Juvenile RRP research study at Mass Eye & Ear and Mass General Hospital
For more details

NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1 antibody therapy.  – Completed
See announcement to RRP practitioners – August 9, 2016. 

For more details about trial results

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RRP Patients

Connect with fellow patients on our Facebook page, be part of an international RRP Registry, learn about Social Security Disability and learn about adjunctive RRP therapies.

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RRPF Pamphlet - An RRP Patient's Guide

To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"

Find a Practitioner

Find an RRP Practitioner near you! A complete listing of practitioners around the world is listed.

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Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

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Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories

Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

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About the Foundation

The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Stories

Morgan Toll on Inside Edition[Read More]

2019 Rare Disease and HPV Awareness Days Patient Image Stories

Rare Disease Day and HPV Awareness Day Image Stories...[Read More]

Foundation News

Social Security Disability

RRP Patients May Be Eligible for Social Security Disability. See Details   ...[Read More]

In Memory of Christina Garner

On June 25th 2020, 34 year old Christina Garner's long battle with RRP came to a tragic end. To quote Christina's father, Rocky, "... our...[Read More]

!!!! New RRP Patient Registry!!!!

Please help us and the RRP medical/research community by being part of an international RRP registry.  The RRPF has coordinated with CoRDS (an organization that...[Read More]

Loss of Another RRP Warrior

The Recurrent Respiratory Foundation is deeply saddened by the loss of RRP Warrior, Olivia Chaparro. Olivia was a loved member of the RRP community and...[Read More]

RRP Foundation Pulmonary Papillomatosis Research Initiative (PPRI) 2019 Grant – RFP

The RRP Foundation is pleased to announce that we are providing funding of $50K for an RRP research study, "Murine Papillomavirus as a model for...[Read More]

HPV Awareness Day 2020 March 4

The International Papilloma Virus Society along with a number of HPV partner organizations remind the RRP/HPV communities that March 4, 2020 is HPV Awareness  Day. ...[Read More]