Donate

While we breathe, we hope

With our voices united, we can and will work to end the burden of this disease on patients and caregivers. 

Join the RRP Registry
Patients/Caregivers

Our Mission

The Recurrent Respiratory Papillomatosis Foundation is on a mission to find a cure and ultimately eradicate RRP, so that it becomes a disease of the past. On our journey to find a cure, we will be funding promising research proposals, spreading awareness of RRP, and supporting patients and caregivers on their RRP journey. With our voices united, we can and will work to end the burden of this disease on patients and caregivers.

Join us

What we're doing to help the rRP community

Join the RRP Registry

Join the ongoing research in the CoRDS Study

Kid Zone

(Coming Soon) A place for kids to connect with other kids living with RRP

RRPF News

See the latest articles about RRPF and our community

Facebook Support Group

Join our community and find helpful information

There are nearly 20,000 global cases of RRP.

Let's change that

Recent RRP Research News and Education

0 +
RRP Cases Globally
$ 0
Avg. Yearly Cost of Treatment
0
Clinical Trials Ongoing
0
New cases of JORRP in the US yearly (estimated)
14
Cures

With every breath, we're helping rRP patients get
their second wind

Join our fight today.

I'd love to help

Patient Stories

"The RRPF has made a huge difference in our daughters' life and helped in so many ways. We don't know where we'd be without them".
BobbyParent
“The group allowed me to understand I wasn’t alone with this condition. It’s almost like my quasi family”
LauriePatient
“I found this group maybe 5-6 years ago and my 30 years of life leading up to that day, I felt so alone.”
SaraPatient
“Doctors provided few treatment options and little to no reassurance. It wasn’t until I found this group that I found hope.”
CelestePatient
“This community has provided a level of love, understanding, support, and encouragement that no one else in our lives could give or even begin to give us”
JesscaCaregiver
“This group has given me a place to be understood by a group of people when it feels like 98% of the population just doesn’t get it."
TaylorPatient
“A couple of years ago I found someone on social media who had also been living with this disease and she added me to this group. It changed my life and gave me a sense of hope and community that I had never felt before”
AlyxPatient
Previous
Next

Keep up to date with rRPF

We work tirelessly to provide the RRP Community with timely and helpful information about trials, treatments and anything else that can help our fight.

Join the RRP Registry

Treatment Three of the NIH PRGN-2012

June 23, 2022

On June 14, 2022 I travelled to the NIH/Bethesda, MD for my third treatment in the four-treatment series of this research study.  My spouse travelled

My Experience in a NIH Clinical Trial

June 17, 2022

Notes from my Participation in a Research Studyat the National Institutes of Health (NIH) STUDY TITLE: A Phase I/II Study of Adjuvant PRGN-2012 in Adult