NORD Donate

Learn about the RRPF International RRP Patient Registry

!!! Enroll Now !!!


Go To Our Facebook Page

Clinical Trials

The following are clinical trials  recruiting RRP Patients or recently completed with relevant results.

2020 July 29

INOVIO Receives Orphan Drug Designation From U.S. FDA for DNA Medicine To Treat Recurrent Respiratory Papillomatosis 

To learn more go to: Inovio RRP Clincal Trial 2020

2020 June

Inovio Pharmaceuticals is now enrolling RRP patients for a clinical trial to investigate the efficacy of a new immunotherapeutic drug.  Please see the following sites for more information:

https://www.ns-healthcare.com/news/inovio-clinical-trial-ino-3107-rrp/

and

https://clinicaltrials.gov/ct2/show/NCT04398433?term=inovio&draw=1&rank=1


2018 Nov – New Immunotherapy trial for Adults with RRP at NIH – recruiting new patients. For more details


2018 Immunological/Genetic Juvenile RRP research study at Mass Eye & Ear and Mass General Hospital
For more details


NIDCD trial for aggressive RRP patients over 18 years old using anti-PD-L1 antibody therapy.  – Completed
See announcement to RRP practitioners – August 9, 2016. 

For more details about trial results

Learn More

RRP Patients


Connect with fellow patients on our Facebook page, be part of an international RRP Registry, and learn about adjunctive RRP therapies.

Read more

RRPF Pamphlet - An RRP Patient's Guide

To read about the potential role of anti-PDL-1 therapy for aggressive RRP, go to "Publications, Resources and Links"


Find a Practitioner

Find an RRP Practitioner near you! A complete listing of practitioners around the world is listed.

Find Yours

Kid Zone

Are you a kid who has been diagnosed with RRP? Check out materials made special for you.

Start exploring


Remission News

See featured patient profiles of those who have gone into remission and are doing well.

Read their stories


Publications, Resources, and Links

Browse our library of publications and materials to start learning more about RRP.

Start Browsing

About the Foundation


The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Learn more the RRP Foundation

Featured Stories

Morgan Toll on Inside Edition

https://www.insideedition.com/media/videos/woman-vocal-cord-disease-fights-her-dream-52126...[Read More]

2019 Rare Disease and HPV Awareness Days Patient Image Stories

Rare Disease Day and HPV Awareness Day Image Stories...[Read More]

Foundation News

In Memory of Christina Garner

On June 25th 2020, 34 year old Christina Garner's long battle with RRP came to a tragic end. To quote Christina's father, Rocky, "... our...[Read More]

!!!! New RRP Patient Registry!!!!

Please help us and the RRP medical/research community by being part of an international RRP registry.  The RRPF has coordinated with CoRDS (an organization that...[Read More]

Loss of Another RRP Warrior

The Recurrent Respiratory Foundation is deeply saddened by the loss of RRP Warrior, Olivia Chaparro. Olivia was a loved member of the RRP community and...[Read More]

RRP Foundation Pulmonary Papillomatosis Research Initiative (PPRI) 2019 Grant – RFP

The RRP Foundation is pleased to announce that we are providing funding of $50K for an RRP research study, "Murine Papillomavirus as a model for...[Read More]

HPV Awareness Day 2020 March 4

The International Papilloma Virus Society along with a number of HPV partner organizations remind the RRP/HPV communities that March 4, 2020 is HPV Awareness  Day. ...[Read More]

In memory of Jeremy Spock

I am very saddened to report that on September 9, 2018, RRP patient Jeremy Spock passed away at the tragically young age of 35.  He...[Read More]